Carol O. Long, PhD, RN, FPCN, FAAN

Principal and Founder
Capstone Healthcare & Palliative Care Essentials
Fredericksburg, Virginia USA

Phone: (480) 204-0911

Expertise Areas:

Dr. Long’s continuing research centers on the delivery of culturally congruent quality palliative care practice and the care of older adults throughout the US and specifically Asia. One continuing effort is the validation and adaptation of the instrument Questionnaire of Palliative Care for Advanced Dementia (qPAD) which continues to be tested and included in palliative care research across numerous countries. This effort is congruent with teaching palliative care across the globe. Dr. Long holds is also the Research Chair of the International Home Care Nurses Organization. Dr. Long was inducted as a Fellow in the Hospice and Palliative Nursing Association in 2009 and the American Academy of Nursing in 2014. She continues to travel internationally to teach, conduct research and advise in matters related to palliative care, best practices in dementia, and transcultural nursing.

Languages spoken, read/write*:


Select Publications:

Peer reviewed manuscripts:

Chen, I., Lin K, Hu, S. H., Chuang, Y., Long, C. O., Chang, C., & Liu, M. F. (2018). Palliative care for advanced dementia: knowledge and attitudes of long-term care staff. Journal of Clinical Nursing. 27, 848-858. DOI: 10.1111/jocn.14132

Long, C. O. (2017). Maximizing comfort for the person with dementia: Nursing care approaches that work. Japanese Journal of Nursing and Health Science, 15(2), 36-44. Available

Nakanishi, M., Miyamoto, Y., Long, C. O., & Arcand, M. (2015). A Japanese comfort care booklet about palliative care for dementia in nursing homes. International Journal of Palliative Nursing, 21(8), 385-391.

Book Chapter:

Long, C. O., Brown, C., Murphy-Ende, K., Newton, S., Glennon, C., Hankle, K. S., & Lubejko, B (2014). Involvement of the Oncology Nursing Society (ONS) in palliative care and educational programs in the Middle East. In M. Silbermann (Ed.), Palliative care for the cancer patient: the Middle East as a model for emerging countries (pp. 245-255). Hauppauge, NY: Nova.

Present/Future Directions 

Transcultural nursing is the essence of person-directed nursing care. One cannot address needs of patients without understanding and integrating transcultural theory, principles and practice. It is essential to incorporate the essential elements of transcultural nursing in all aspects of service, clinical practice and research.

Updated 01/2021